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KMID : 0922320110180020099
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Journal of Korean Academic Society of Home Care Nursing
2011 Volume.18 No. 2 p.99 ~ p.107
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The affecting factors on the caregiver’s quality of life and family function for their children with muscular dystrophy
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Mo Jin-A
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Abstract
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Purpose: To describe the quality of life (QOL) and family function in primary caregivers who take care of a child with muscular dystrophy (MD).
Methods: We studied a sample of 359 children and their primary caregivers. We collected the data through interviewing the caregivers and using a Short Form health survey-12 (SF-12) and Family APGAR scale. The functional status of a child was measured by the Modified Barthel Index (MBI). T-test, ANOVA and multiple regression analysis were used for data analysis.
Results: Caregiver QOL was , and was statistically associated with the caregiver level of education (t=7.436, p<.001), the status of their job (t=3.038, p=.049) and their marital status (t=-4.180, p=.001). Caregiver QOL was also associated with the child gender (t=9.060, p=.003), age (t=18.613, p<.001), level of education (t=7.023, p<.001) and their functional status (t=10.615, p<.001). The physical dimension of QOL explained 21.0% of variance in child character. Family function was at 4.37, statistically associated with the child’s level of education(t=2.617, p=.012) as well as the age(t=2.774, p=.041), the caregiver level of education (t=2.617, p=.024). Family function explained 1.2% of variance in child character.
Conclusion: The role of nurses should expand to involve family-care including caregivers as well as patients.
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KEYWORD
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Family, Quality of life, Caregiver, Muscular dystrophy
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